> Why be so secretive? This is not a military mission. These missions cost a lot of taxpayer money (money well spend you may argue), but we deserve full transparency.
We deserve as much transparency as we can get on the science we as taxpayers paid for, not full de-anonymization of the bodily happenings of living crew. There's certainly valuable science here, but the crew member doesn't have to be outed for it.
> You don't get to go to space on other people's money and expect privacy.
I don't think this is a healthy mindset, and there's a heck of a slippery slope with this argument. Would we apply this to companies receiving federal grants too? Contractors? Universities? Schools? That's a lot of people who'll lose medical privacy for something probably unrelated to their job, and there'll be a much smaller applicant pool for the jobs themselves if applicants are aware that their own internal issues might be disclosed when the public clamors for it.
> We might want to learn from what went wrong here.
Agree, NASA certainly will, and new science and engineering will come of it that we benefit from. But that doesn't have to involve breaching medical privacy and ethics.
I'm genuinely fine sharing my medical history, but I don't know if my lack of shame about e.g. testicular torsion, or the way that I lost my notes for a bit and unnecessarily got repeats of vaccines I'd already had, are a sign of being in possession of a boring medical history, or an indication of an uncommonly diminished shame response.
Whatever it is, I am aware that my lack of concern here is something which makes me different from normal people. I don't really get why people in general are ashamed of their medical histories, but I nevertheless absolutely do support everyone's right to keep such secrets, because there's a few specific cases where the medical history reveals something socially damaging either in the present or with a risk of it becoming so in the future, the obvious example of which is an abortion given the US seems to be facing a loss of freedom in this regard.
(Perhaps most people have something socially damaging in their medical histories, and I've just not noticed because nobody says the thing?)
The "I have nothing to hide" argument doesn't work for security, and it doesn't work for health care records either.
You might not have anything to hide now, but you might in the future. Someone you are closest to gets murdered or into a horrific violent accident right in front of you. Despite your best efforts this gives you crippling PTSD and you are committed involuntarily for a 72 hour hold. Now your future employer (legally or not) runs a quick records check and sees you have mental health concerns and really doesn't care about the context. Why roll the dice? Go with the candidate who was in a close 2nd and already a coin flip who doesn't have such a thing in their history.
Plenty of other scenarios that can happen to anyone even if they live the most perfect boring life imaginable and never do anything interesting ever. Plenty more for folks who step off the reservation of "acceptable social/corporate behavior" even a little bit.
Plus, if you want to protect folks like in your example of having an abortion on their record - you need to vehemently defend their right as a boring person yourself as that's the only way such individuals will ever be protected. It's like herd immunity but for privacy.
It's not about the people who have nothing to hide. It's about the people who do.
I don't know about 'a few specific cases'. STIs, mental health issues, pregnancies (interrupted or not, voluntarily or not), contraception methods and/or lapses, anything often misunderstood like MS or neurodegenerative diseases, huntington, substance use/abuse (voluntary or not), victim of assault (sexual or not), sterility/fertility/impotency/incontinence, any manageable medical issue someone might use to not give you a job, to rent you an apartment, although you do actually manage it well...
None of those I'd want shared anywhere, to anyone, against my will. Those (overall) are not rare.
This is not honestly engaging with GP's statement.
The benefit only accrues if the sharing is universal.
I am too private a person to agree with GP, but it does seem that most health issues that are visible to the passerby or casual acquaintence are less stigmatized than the ones that can be hidden. There might be something to the idea.
Of course you'd have to agree that de-stigmatizing is more socially important than privacy. I guess I'm privileged enough to have no stigmas, secret or otherwise, that I consider more important than my privacy. But I know others are less fortunate.
GP did not specify that their thought was scoped to the same people as GGP's (explicitly dystopian) scenario, so I read their comment as working on the kernel of the idea and not the horrifying class-based discriminatory version.
While I am still confident of that assessment, I'll grant you that "obvious" charitable interpretation is not as reliable as it should be. :-/
We deserve as much transparency as we can get on the science we as taxpayers paid for, not full de-anonymization of the bodily happenings of living crew. There's certainly valuable science here, but the crew member doesn't have to be outed for it.
> You don't get to go to space on other people's money and expect privacy.
I don't think this is a healthy mindset, and there's a heck of a slippery slope with this argument. Would we apply this to companies receiving federal grants too? Contractors? Universities? Schools? That's a lot of people who'll lose medical privacy for something probably unrelated to their job, and there'll be a much smaller applicant pool for the jobs themselves if applicants are aware that their own internal issues might be disclosed when the public clamors for it.
> We might want to learn from what went wrong here.
Agree, NASA certainly will, and new science and engineering will come of it that we benefit from. But that doesn't have to involve breaching medical privacy and ethics.