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I've pulled four of the little bastards off me, this summer (so far).

They have gotten much worse, in the last few years (Long Island, NY).

I also know a few (several) folks that have had very bad, life-changing debilitation, as a result of Lyme. I'm aware of one (that I never met), who died from complications of Lyme. I also have a family member, that got it pretty badly, recovered completely, and now seems to be immune.

I'm having myself checked at the doctor, next week.



How are you getting checked? I understood (perhaps wrongly) that the blood tests are only accurate well beyond the window with which the medications are effective, creating a chicken and egg issue.


After a couple of days in the mountains, I found four ticks, and one bite started to turn red after two weeks.

I went to the doctor, she said the tests at this phase are unreliable, my bite could be Lyme, but could be something else too (the bulls eye rings didn't form yet). She said the pragmatic approach is too treat it as if it was Lyme and take antibiotics. It's better to take some antibiotics than wait for the symptoms (which are not always easy to assign to lyme).


There's no definitive accredited lab check as far as I know. At least here in Germany the official serologic tests for late stage Lyme can come back negative for years until the disease really progresses badly - even cerebrospinal fluid results may be normal despite neurological symptoms. My specialist uses elispot lab tests for Borrelia b. OspA, antigen and LFA-1 markers.

Other practitioners use westernblot lab results and differential diagnosis.


have you seen recent immunostaining result? albeit in research, amazingly you can actually see the bacteria.

They claim it can be cultured too.

https://www.frontiersin.org/articles/10.3389/fneur.2021.6280...


Thanks for that link, super interesting.

Check out also Dualdur, received 3MEur from EU in 2018.

https://lymediagnostics.com/why-dd/


Not exactly sure. I made an appointment. First time I've done that. It may just be a "put it on the record" visit, with follow-ups in some months.

My relative didn't find out, until he had a cantaloupe for a kneecap. They tested the fluid, and found lots of Lyme.

He's always getting bit. Deer pass through his backyard, on a regular.

He said the treatment was anticlimactic. A course of oral antibiotics.


I've heard that Fry Labs is one of the only labs to do blood testing, but I haven't tried them myself:

https://frylabs.com/resources/lyme-disease-and-detection/


Fry Labs is listed on Quackwatch's list of "Laboratories Doing Nonstandard Laboratory Tests": https://quackwatch.org/related/tests/nonstandard/

The CDC warns against nonstandard testing: https://www.cdc.gov/lyme/diagnosistesting/labtest/otherlab/i...

You'd be surprised how little regulation that some lab testing gets: https://sciencebasedmedicine.org/new-fda-regulatory-role-thr...

There are a lot more predatory labs than Theranos out there...


why is there a window? people report recovery after several years with an appropriate treatment.


Recovery with Lyme isn’t always forever. It apparently goes into remission and comes back later. Not sure if anyone knows why or how it does that. AFAIK it is only cured if treated very quickly, before the blood tests are accurate.


The bacteria migrates throughout the body over time, including into the brain and spine, so it's easier to eliminate when treated promptly.


The bacteria can cause long-lasting damage, basically, and the symptoms of Lyme disease can just be that damage.


Yes, that can be on me situation.

The frontiers study shows bacteria persists inside the brain.


I haven't seen any recently but they were really bad earlier in the summer in Massachusetts to the point that there were a couple walks that I was doing regularly that I decided to forgo for a bit. And anecdotally I've heard a similar story from others. (Fortunately, everything I've seen have been the larger dog ticks.)


Dog ticks?




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