I had a complication with my vision where I could have become blind, and was in the same position as you are. There are blind engineers, and compared to 15 years ago, there are many highly configurable and powerful tools at a blind engineer's disposal. After doing some research, I walked away slightly relieved at what options were available. I'm just posting this to give you a bit of hope.
I highly suggest documenting your condition, its progression and your eventual disability, and getting your disability status recognized by the government as soon as you can. Navigating social services and the ADA is a skill in itself.
Here in AZ the gov vocational rehab is so understaffed just to be onboarded I received an appointment almost a year after I called. Now with corona virus cases will surely have been pushed back even further possibly for another year. It's so frustrating to work with.
Even just getting diagnosed I had to fight my insurance company who said that a DNA test was not necessary (it's a genetic condition???).
All of these things are the reason I'm trying to get ahead of all this. This entire thread has given me a lot of hope, thank you.
I highly suggest documenting your condition, its progression and your eventual disability, and getting your disability status recognized by the government as soon as you can. Navigating social services and the ADA is a skill in itself.